Over the summer, we were hit with a triple whammy. Over the course of just a couple of days, we got three letters, one after another. Each one was a punch in the gut, increasing in intensity each time. First, the SSI benefit Sam had been receiving that was our only available option to pay for therapy was being taken away effective the following month. This, just after receiving a letter a couple of weeks before that saying that he had been approved. Then, a second letter informing us that since Sam’s Medicaid insurance had been tied to his SSI, and because he lost SSI, he now also lost his health insurance, effective the following month as well. Still reeling in shock from those first two letters, the final blow that landed me in the fetal position was a third letter from SSI informing us that after their research, they had determined that they overpaid us – by 100% – for the previous nearly two and a half years; oh, and by the way, now we had to pay them back a 5-digit amount. It’s hard to get back up after getting knocked down as hard as that. But it’s so much harder to muster the strength to fight back.

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