It’s easy to become overwhelmed when your child’s condition is constantly changing, and it seems that each day brings more medical terminology to google. The things we search for online as caregivers are quite interesting at times. Sometimes all the searching just leaves us with even more questions than answers. We put so much weight in the knowledge of our medical team, yet there are times when our children leave even the doctors scratching their heads. There are days when we get bogged down with all the logistics; we fail to treasure the miracle of the moment we are living.
When we see that we’ve landed in the place of unknowns, it is critical that we cling to the One who is known.
Our calendars are filled with color coded schedules, only to have one simple phone call from a provider throw the whole next month into a tailspin. I find myself scrambling to make all the pieces fit again. Often times a new diagnosis means more trips to specialists and more tanks of gas to fill. Some months we wonder which will be drained down to empty first—our gas tank or our patience? Will the new provider have enough experience to guide us in the right direction? Will they see our child—our beloved treasure—beyond the diagnosis?
“I want to know Christ – yes, to know the power of his resurrection and participation in his sufferings, becoming like him in his death.” Philippians 3:10.
He is unchanging. He is with us. He knows every tear you shed as a parent and caregiver. He knows your weakness. He knows your fears. He is full of grace and mercy. And while we might feel that we’re on a ship in a raging sea—our Father is not shaken. He is steady and sure. He doesn’t leave us without hope.
Source: Special Needs Parenting- Key Ministry