Overwhelmed. Exhausted. Tired. Crabby. Of course we’ve had those times when life is all of those things and we don’t see the light at the end of the tunnel. We don’t even see the tunnel! But over time, we have purposed to take back the sound track of our life and change some of the…

As we move into the new year—how can it possibly be 2020?!—this poem by Howard Thurman, an African-American theologian, educator, and civil rights leader, seems to be the perfect jumping off point for reflection: The Work of Christmas When the song of the angels is stilled, When the star in the sky is gone, When…

For several years, a part of me dreaded November, December and early January. The holiday season—from Thanksgiving through Christmas and New Years—can be a wonderful opportunity for family and friends, traditions, spontaneity and general festivity. But for those of us experiencing the unique challenges of parenting someone with special needs, there can be a looming…

2019 closed with the heartbreaking loss of Olive Alayne Heiligenthal, the two year old daughter of Andrew and Kalley. They are active in Bethel Church in California, a faith community known for its focus on signs, wonders, and miracles. The founder of the church, Bill Johnson, holds to what he calls a “Jesus is perfect”…

“It’s the most wonderful time of the year!” I hear the music and sway to it with a smile, but do I really feel that way? Do you feel that way? I can honestly say that sometimes the added pressure of buying and wrapping gifts, decorating, sending greetings, baking, and all the rest can be…

Those of us who care for children and young people with additional/special needs, whether as parents/carers, children’s and youth workers, or in other professional roles, become good at expecting the unexpected, anticipating the unpredictable, and dealing with unsurprising surprises! Our lives are different than most, no two days are the same, and we get to…

November 6, 2019   Autism, Challenges, Special Needs Parenting This past April I wrote the first part of this blog, based on a workshop that I and my writing colleague, Sarah Broady, presented at Key Ministry’s Inclusion Fusion Conference that month and also presented at the Wonderfully Made Conference in October. The workshop is based on a conversation…

Being fourteen months younger than my sister with Down syndrome wasn’t always easy. We were a grade apart in school, in a town where everyone knew everyone else. I was occasionally referred to as “Syble’s sister” instead of by my own name. When people made jokes about the kids on the short bus or used…

column width=”1/1″ last=”true” title=”” title_type=”single” animation=”none” implicit=”true”] Crying when God gives what I need and not what I want is a regular event in my life. It’s most recent occurrence happened on Sunday. At church. During the sermon. I thought I’d hidden my tears. Until the woman to my left scooted a few inches away,…

There’s a weight like no other that exists in the world of medically complex kids. You spend your days—and sometimes nights—advocating, transporting, scheduling, and caregiving for this most precious treasure that you call son or daughter. You learn to be master juggler of all things, even if you have no athletic bone in your body….

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